DEBRA
DEBRA (formerly known as DebRA) is the name of an international medical research charity dedicated to the curing of Epidermolysis Bullosa with National Groups in over 40 countries (including the British and American) and growing.
Debra is the first name of the daughter of Phyllis Hilton, the original founder of the organisation in the UK, which began as a support group for parents, guardians and carers of other young children with the condition.